I’ve been struggling with a lot of RA pain lately because of not being able to take my Enbrel shot for the last four weeks. I’ve had some sores that wouldn’t heal and needed targeted care from the wound clinic. Enbrel suppresses the immune system and can slow down the healing process. I wrote the following poem a few months ago, reading it again helped me put my current situation in prospective.
Some of you may remember reading it on another blog, but I thought it might be time to repost it for my new readers. (Besides, that blog no longer exists.
What a week I’ve had! Those pesky e-fairies have been messing with me. One after another something went wrong with my computer: I had accounts closed, accounts threatened to be blocked, and several contacts’ emails just disappeared into cyberspace! What did I do? I took a deep breath, calmed myself down and started repairing the “damage.”
I’ve thought a lot about life and loss lately. In January, a wonderful woman was taken from us. She lived a full life…94 years. Although I only knew her for the last four and a half years, that time will always be precious to me. I came to love her like a mother.
Memories of the loss of another person I loved came to mind and I wanted to share it with you. This is the story of a friendship I developed in 1996.
One day, several months ago, I searched the internet for other blogs on the subject of living with rheumatoid arthritis. There were quite a few listed, however, I was looking for more personal, “real” writers. I discovered two blogs that were entertaining as well as informative. I decided to share them with you here. (My friend Kelly MCcausey at SoloSmarts calls this “link love”)
RHEUMATOID ARTHRITIS WARRIOR
Written by Kelly Young, empowers other RA sufferers in a lighthearted and inspiring manner. As one of those people, I find it easy to relate to her stories. This blog is entertaining enough that even if you don’t have RA you should enjoy reading it.
Kelly’s “About” page relates her journey of living daily with the challenges of RA. She mentions her faith in God and how through her words she strives to “inspire others to trust God for help and hope.”
Unfortunately, I can’t find an “About Me” page. It would be nice to know more about this writer; she has a humorous, yet informative style. As it is now, the only way to get to know this writer is by reading past posts…and there are a lot of them!
Rheumatoid Arthritis: A Life-Changing Disease has been published as an ebook. I had many comments about how inspiring my life is, therefore I decided to “put it out there.” This ebook is a preview to my longer book due out in 2013..
Go to Rheumatoid Arthritis: A Life-Changing Disease to buy it.
I haven’t forgotten about you. I’ve been busy assembling the third Curly Wolf book for my fiancé, Greg Laws.
Curly Wolf is a charming comic strip featuring a young boy who goes on imaginative adventures with his dog, Winston, and best friend, Binky.
We want to get the book ready to sell by Christmas, as it is a great gift for all ages.
Needless to say, I haven’t worked much on my book, either. I am filling in paragraphs of a very rough outline (I’ve never been good out developing outlines) and so, still in the first draft stage.
Stay with me and if you have comments, please share them.
Oh, and please check out Greg’s site and book.
My grandma, Grace, was small in stature, but big in spirit. Under 5 foot tall, she was a force of great intensity. She controlled her family firmly with love and a deep faith. She made everyone feel valued.
Amazing Grace is her story. I expanded my post, An Amazing Woman, from June of this year.to show more of her influence in my life. I hope you enjoy it.
Do you have a memorable person in your life? I’d love to hear about him/her.
It was cold that day; snow and ice covered the ground. Mixed feelings of fear and excitement filled me as I walked the few blocks from the hotel to the Mayo Clinic in Rochester, Minnesota. Excitement because I was at the Mayo Clinic, a famous medical institution. Fear because I had an appointment with a specialist to discuss the possibility of surgery on my hands. A surgery that was to be the first of many to repair the destruction rheumatoid arthritis would do to my joints.
Vague impressions and feelings flood my mind as I put my life story on paper. Although I will strive to be factual, it’s been many years since my journey with R.A. began and I can’t always be sure if they are memories or not. Hopefully, as the writing process continues, the message of hope and faith is stressed and not the specific details of each step taken on my life changing journey.
I was an active child,; you would probably call me a tomboy. I enjoyed climbing trees, fishing, riding my skateboard and playing in the dirt. As I got older, my interests turned to gymnastics and tumbling. I would spend hours doing cartwheels and sommersaults. So when, at seventeen, the doctors told me I had rheumatoid arthritis, I didn’t believe them. I had seen people with arthritis. They were old and crippled, barely able to get around without some assistance. I could run, jump, and even do the splits.
I’ve lived through a lot of changes in my life since that time forty years ago. I’ve gone through frustration, pain, and acceptance. I’ve had numerous doctors’ visits, hospital stays and several major surgeries. Every major joint has been replaced, a couple more than once. Evenso, I maintain a positive outlook and enjoy many activities.
I’ve been encouraged to write down my experiences and have begun compiling the stories.
It was also suggested they be published for others to read. I hesitate to do this. Does this sound like an interesting book; one you would want to read?